LivinLife123

Livin Life, one day at a time, and filling you in on the randomness of it all!

Autism Is & Isn’t February 22, 2012

Filed under: Autism,kids,Parenting,thoughts,Uncategorized — Sara @ 5:27 pm
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Autism is:

  • Finding new creative ways to teach our cuties, it’s not that they aren’t smart it’s that they learn differently, you have to find what works for each child individually
  • Knowing when to stop pushing to avoid meltdowns / but knowing how much to push to encourage learning.
  • Positive Reinforcers (aka bribery)…and lots of them….hey I don’t work for free either…just saying
  • Different for every child …just as every child is different, autism or not
  • As a parent, trying to give your child all the fun experiences any child should get the opportunity to enjoy, all while sheltering them from the stares, the possible sensory overloads, and the general assheadness of many out there who mistake things like stimming for misbehaving
  • Celebrating the small victories
  • Remembering that autism is not our kids, our kids may have autism, but our kids are still just kids
  • Realizing that no matter how frustrating it may feel at times from the parent side of it, remembering it’s a million times more frustrating for our cuties…not being able to express what they are trying to, it’s heartbreaking
  • Being a translator…to the world my sons speaks a foreign language, to me he speaks pretty clearly
  • A constant fear of regression
  • You, as a parent, fighting for all the services your kids need and finding ways to make sure they get them

Autism isn’t:

  • Caused by lazy parents..while experts cannot agree on what causes autism, and I have my own 2 cents on the issue….it is 100% NOT caused by lazy parenting
  • All savants and rainmen, yes there are some true geniuses out there…some with autism, some without, but autism doesn’t always = geniusness
  • Excuses….as parents it’s our job to make sure our kids learn; learn right from wrong, learn appropriate behaviors, learn anything and everything they can learn, anything and everything we can teach them, no excuses are acceptable
  • Therapy 24/7, or at least it shouldn’t be….yes consistency is important, but remembering that everyone needs a break and needs down time is equally important. I don’ t get parents that push therapy all the time…My job is to be mom, to tackle the mom duties, the therapists job is to do therapy….my job is to carry over what I can into the home, not to do hours of nightly drills after my kiddos already put in a full day at school and after school therapy
  • Bad…I hate all the whinning…in fact I have 2 posts ranting all about it, just waiting for my Bloggy Blankitis to go away so I can finish up the posts….Venting is 100% okay, but realizing autism isn’t bad/terrible/tragic/the end of the world is so important.

So…to sum up my mini rant….Autism is learning new creative ways to make sure our cuties learn, everything else is just parenting….remembering our kids are still kids and are perfect just the way they are, and LOVING them like CRAZY!!!!!!!!!!!!!!

And a final thought on being nonverbal, “Just because I have no words doesn’t mean I have nothing to say”.

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Mom Lessons January 17, 2012

Filed under: Autism,kids,Link Ups,Parenting,thoughts — Sara @ 5:17 pm

10 Things I’m Learning Being A Mom

Note I say I’m Learning, not I’ve Learned, because every day I learn something new, every day that quote from The Real World flashes through my head saying, ‘You think you know, but you have no idea’…. Here’s my list of 10 things that [I think] I know, as of now:

10- Siblings fight more than any only child thrown into parenting can ever be prepared for….autism or not, brothers will be brothers, boys will be boys, and they will shenanaginize as such

9- YouTube can be a great teacher. I would have thought this one was bs a few years back, but my son is addicted to a YouTube channel called kidsTV123 My son has learned his colors, days of the week, months of the year, all sorts of good stuff….check it out (and no KidsTV123 has no knowledge of me or this post, and I am in no way being compensated for my opinion, I just think it’s a great fun learning tool for children)

8- Sometimes it’s easy to over parent…know what I mean? Kids have to learn to work things out for themselves, how to entertain themselves, and how to manage their kiddo business (for lack of a better word lol)

7- Sanity Savers are important for any parent….and by sanity savers I don’t mean wild kid-free nights out on the town….I mean simple things you can add in your daily routine to make your day a little more laid back. Check out mine HERE.

6- Kids will be kids, let them…..teach them, guide them, but don’t rush them into being an adult

5- Trust your gut….for everything an expert or professional knows, 10,000 parents have known and told said professionals about numerous times (i.e.- autism parents have been speaking of the powers of probiotics for years, doctors laughed at us for years, now every grocery store diary isle loaded with yogurts preaching the powers of probiotics…those same probiotics we were nuts for using a few years back…)

4- While eating healthy is important, stressing yourself out to the point of sickness over your kids not eating isn’t worth it. Offer healthy choices at each meal, limit snacking when possible, and never forget the power of a multi vitamin

3- Kids will have meltdowns, especially with autism – they just happen , that doesn’t mean our whole world stops, that means ‘You can be mad, but go be mad in your room, and come out when you’re done’

2- Pick your battles

-and the number one lesson I’ve learned being a mom, and this one I know is a FACT

1- Your kids are 100% perfect, tell them that and that you love them EVERY DAY!

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-In my early days of parenting, 19, pregnant with the little man, hanging out outside our soon to be built house with my hubs and the twins….about 7 years ago.

So what’s on your list of 10 Things You’ve Learned as a Mom (or Dad)? Do a post of your own and add your link, I’d love to check it out 🙂

I’m entering this post in LoveLinks #40….I’ve been reading the LoveLinks Link-Ups for weeks now, and this is my first week to join in…click the link below to check out all the other great posts /bloggers linking up

 

Autism Funding Resources – Nation Wide January 12, 2012

Filed under: Autism,family,kids,Parenting — Sara @ 7:05 pm
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Therapy is EXPENSIVE! Hell, kids are EXPENSIVE, but throw in therapy, durable medical equipment, respite (if you choose to use it), afterschool care….the list could go on and on…..and as many of you know a lot of insurance companies don’t cover things like therapy for autism. I guess they don’t realize, or maybe just don’t care, that 1:91 kids will be 1:91 adults sooner than any of us are ready for, but that’s a rant for another day….In an effort to help cover the costs some great organizations have set up grants to help out special needs families. This is a list of national programs available, but don’t forget to check out local charities and foundations too, they can offer a lot of help.

 

I’m sure there are more organizations out there, these are a few I’ve either had a good experience with or heard good things about from other families. I am in no way affiliated with / or being compensated by any of the organizations listed below, in fact most of them don’t even know me, or that this blog exist. Also, I encourage you to do your research before working with any organization, sadly there are companies out there who will take advantage of those in need…whatever the need may be.

 

 

The Brett Woodhall Foundation – they mainly provide funds for ABA, there is a spot on the site that talks about Grants and Resources available to families http://www.woodallkids.org/contact.html

Variety – offers a lot of assistance to special needs families, they helped us receive funding for ABA therapy for our sons.  http://www.usvariety.org/programs.html In our area they also do *FREE*special needs showings for every kids movie that comes out the Saturday after the movie is released. Check out your local Variety to see if they offer special needs movie showings too!

United Health Care provides grants to families with private insurance (you do not have to be with UHC insurance) http://www.uhccf.org/apply_applicant.html

There are a long waiting lists, but if you have Medicaid there are Medicaid waiver programs, such as CLASS and HBCS, that provide funding. They vary by state but here is a link to a national list that will let you search for state and the waivers available to you http://www.medicaid.gov/Medicaid-CHIP-Program-Information/By-Topics/Waivers/Waivers.html

The Shriners / Masonic Lodge is also a great resource for funding, however grants are handled by state, not nationally. After a simple application I found online, and a letter from the my sons doctor they covered almost 6 months of 1:1 ABA therapy for my sons (I cannot guarantee you would get the same results we did, but they are definitely an organization worth looking into)

And finally a list of random grant available to families of children with autism—Some of these I am unfamiliar with but it can’t hurt to look into

http://autism.about.com/od/financialresources/tp/grantsforautism.htm

Still need funding? Not finding what you need to help meet your child’s needs?

Try http://www.giveforward.com/ Give Forward is an amazing website where you create a charity for whatever you need to raise money for. This is how we raised the funds for our childrens’ iPads, thanks to the generosity of friends, family, loved ones, and the kindness of strangers. (note – they do take a small percentage of your total so be sure to factor that in when setting your total fundraising goal)

 

Have any grant programs or charities I missed? Leave your favorite, and a link or contact info, in the comments sections – If it is a group that is only to the area/state you are in please not that in the comment.

 

Cookie Monster Doesn’t Eat Chips…Does He? January 11, 2012

Filed under: 30 Day Photo Challenge,kids,Link Ups,photos — Sara @ 4:49 pm
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I’m behind again…Go figure…

Day 10 – Childhood

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My monster feeding his monster chips … I tried to tell him Cookie Monster wouldn’t eat chips but he proved my wrong.

 

Flying Doodie January 9, 2012

Filed under: Autism,humor,kids,Parenting,Uncategorized — Sara @ 4:08 pm
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Every morning as I rush around getting the kids and I ready for school I tend to follow a routine, as many of you do I’m sure….my routine is probably far from normal, but it works for me….but I digress… Every morning I wake the boys up, change their pull up and tell them to go to the potty, I need to be no more than a step behind them on the way or they’ll lie back down or try to watch TV instead of getting ready. Now I have a full diaper, a clear path to the trash can across the room, and a child headed the potty….What would be more logical than to chunk the overflowed diaper across the house and into the trash? So every morning I change the child, shoo them toward the bathroom, and chunk the diaper along the way….simple enough right??

The other day my hubs changed the full diaper but instead of chunking it he told the little man to take it to the trash. The monster grabbed the pull up, ran to the edge of the kitchen and stopped. Then it happened….He wound up and chucked it, just like mom, but he’s timing was off….He let go a little too early and I ended up with a face full of funky diaper…Good Morning to me….Maybe it’s payback for the time I rolled up a full diaper and chunked it to someone to throw away for me, while yelling ‘Merry Christmas‘ and lmbo …Hmmmm ….

 

Lunches Made Easy (Easier).. January 6, 2012

Filed under: family,food,kids,Money Saving Meals,Parenting,shopping — Sara @ 8:56 pm
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Isn’t this too cute?? I thought so too…but yeah I’m not that mom, in fact most days I’m lucky to get everyone out the door on time,with matching shoes and socks, and hair and teeth brushed…So here’s my lunches made easy easier / solution to massive amounts of wasted snack foods in house….

The Problem:

Spills, Spills, and More Spills === Lots of wasted food

Children Who Dump Out Everything  === Lots of wasted food

Snackaholic Little People === Lots of wasted food

 

 

Wasted food makes me sick for 2 reasons –

  • Money Doesn’t grow on trees
  • There are so many hungry people out there, I hate throwing a whole bag of food away

 

Then there’s the mess factor, as if there’s not enough to clean up just having 3 monsters – dumped out, crumbled up food is not a mess I care to add to my normal mom duties. Add in that when I buy groceries they are meant to last a whole a week, for lunches at school, snacks, etc.   Top that off with the fact that  mornings are chaotic around here,  and I was spending an extra 30 minutes bagging up breakfasts, lunches, and snacks x 4.

 

So I had a plan…

 

Confession – I actually saw this on an eposide of Wife Swap years ago, laughed at it because it seemed like a time consuming waste, then decided to try it out and it’s working wonders….but getting back  on track…

 

I bought a weeks’ worth of cereals, snacks, and breakfast goodies, bagged them into individual serving sizes, boxed them up, and stashed the boxes in a top secret hiding place…Okay the top shelf of the pantry buried behind my warehouse club supply of paper towels….Suprisingly enough it didn’t take nearly long as I expected, in fact since I wasn’t still half asleep, like in the mornings, it took no time at all.

 

 

 

 

 

 

Setting up to start

 

 

 

 

 

 

 

 

 

 

 

 

 

Pre-Bagged Portion Controlled Munchies

 

 

So far I’ve cut the hecticness down in the mornings for myself, and the kids can’t find the sancks so they don’t get wasted. Pretty Genius huh?

 

 

Random Ramblings December 28, 2011

Filed under: Autism,family,humor,kids,Parenting,thoughts,Uncategorized — Sara @ 5:48 pm
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Randomly odd things I’ve said, thought, and a few shenanigans thrown in for added laughability.

‘I don’t pee on your paws, why must you pee on my shoes’

‘Yes, you can use the computer…BUT not while eating peanut butter by the finger-full…want a spoon?’ Child yells ‘No Way!’ and is thoroughly pissed…How dare I say peanut butter is only allowed at the computer when on a spoon or sandwich!?

‘You really couldn’t tell your dog food bowl from the trash?’

…and a few hours later…

‘Your stomach hurts? That is what you get for eating all the garbage…dumb dog!’

‘I’m convinced your kids are trying to kill me’ – While suffering mom abuse playing UFC with the boys

‘I’m convinced your kids are trying to kill me’ – This is actually a common complaint of mine…my boys are some SERIOUS shenanaginizers…that’s all I’m saying ;p

~ On a side note, notice that when the kids are up to no good they are always their dad’s kids

‘Put your pants on’

…and an hour or so later…

‘Seriously, if you must stand in the window you really must put pants on!!’

Apparently I am full of dumb rules… why shouldn’t one child who shall remain nameless, not be allowed to pour milk in their brothers’ shoe?

I was watching Beauty and the Beast and I have to ask, am I the only one grossed out by the fact she loves a beast …she didn’t know he was a man… Beast – Bestiality- Barf

Reminders are important…’I know we cut our brownies with a (butter) knife, but we DO NOT run and swing the (butter) knife around like a wild man, EVER’

‘Whoever finds the poo, changes the poo’—I may or may not have been trying to avoid diaper duty

While making brownies with the monsters:

Me – ‘Don’t put your fingers in the brownie batter’
Child- Puts face over bowl and licks batter straight from bowl…because I said no fingers and this way he wasn’t using fingers….
Me- ‘If you must eat batter, get a spoon’
Child – Gets giant spatula, loads it with a massive amount of batter, attempts to eat it
Me- Now gagging at the sight
Child -Spitting out brownie batter
Moral of the story–All things are good in moderation 😉

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