LivinLife123

Livin Life, one day at a time, and filling you in on the randomness of it all!

Autism Is & Isn’t February 22, 2012

Filed under: Autism,kids,Parenting,thoughts,Uncategorized — Sara @ 5:27 pm
Tags: , ,

Autism is:

  • Finding new creative ways to teach our cuties, it’s not that they aren’t smart it’s that they learn differently, you have to find what works for each child individually
  • Knowing when to stop pushing to avoid meltdowns / but knowing how much to push to encourage learning.
  • Positive Reinforcers (aka bribery)…and lots of them….hey I don’t work for free either…just saying
  • Different for every child …just as every child is different, autism or not
  • As a parent, trying to give your child all the fun experiences any child should get the opportunity to enjoy, all while sheltering them from the stares, the possible sensory overloads, and the general assheadness of many out there who mistake things like stimming for misbehaving
  • Celebrating the small victories
  • Remembering that autism is not our kids, our kids may have autism, but our kids are still just kids
  • Realizing that no matter how frustrating it may feel at times from the parent side of it, remembering it’s a million times more frustrating for our cuties…not being able to express what they are trying to, it’s heartbreaking
  • Being a translator…to the world my sons speaks a foreign language, to me he speaks pretty clearly
  • A constant fear of regression
  • You, as a parent, fighting for all the services your kids need and finding ways to make sure they get them

Autism isn’t:

  • Caused by lazy parents..while experts cannot agree on what causes autism, and I have my own 2 cents on the issue….it is 100% NOT caused by lazy parenting
  • All savants and rainmen, yes there are some true geniuses out there…some with autism, some without, but autism doesn’t always = geniusness
  • Excuses….as parents it’s our job to make sure our kids learn; learn right from wrong, learn appropriate behaviors, learn anything and everything they can learn, anything and everything we can teach them, no excuses are acceptable
  • Therapy 24/7, or at least it shouldn’t be….yes consistency is important, but remembering that everyone needs a break and needs down time is equally important. I don’ t get parents that push therapy all the time…My job is to be mom, to tackle the mom duties, the therapists job is to do therapy….my job is to carry over what I can into the home, not to do hours of nightly drills after my kiddos already put in a full day at school and after school therapy
  • Bad…I hate all the whinning…in fact I have 2 posts ranting all about it, just waiting for my Bloggy Blankitis to go away so I can finish up the posts….Venting is 100% okay, but realizing autism isn’t bad/terrible/tragic/the end of the world is so important.

So…to sum up my mini rant….Autism is learning new creative ways to make sure our cuties learn, everything else is just parenting….remembering our kids are still kids and are perfect just the way they are, and LOVING them like CRAZY!!!!!!!!!!!!!!

And a final thought on being nonverbal, “Just because I have no words doesn’t mean I have nothing to say”.

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6 Responses to “Autism Is & Isn’t”

  1. Awesome post. I love the last quote

  2. The Queen Says:

    Like you said…not sure about what to say, but do have many thoughts! Foremost among those thoughts are:
    1. You’re doing a great job
    2. I’m in your corner

    Praying for you all daily!

    • Sara Says:

      Thank you so much, it means so much to hear you say that and for your support! And I always appreciate good wishes and prayers sent our way 🙂

  3. Dee Jellicorse Says:

    WHAT A GREAT POST!! Since knowing you and your boys through your dear mama, I have learned so much about autism. Thanks for, among all the other things you are, being an incredible teacher. Your spirit, combined with what I suspect is an unflinching tenacity, makes you a leader among the parents of children with autism. You keep up the talk, keep up the fight for services, and keep up the faith. I’ll keep up the faith with you.

    Most sincerely and with warm regards,

    Dee

    • Sara Says:

      Dee, Thank you so much!! Your kind words and thoughts mean so much. I think at times I just get so frustrated at how so many parents see autism as only negative. Kids are kids first and foremost. I’m glad you enjoyed my ramblings 🙂

  4. […] that doesn’t mean feelings don’t creep up occasionally.  I accept Autism and all it Is & Isn’t. I accept I can’t control the future. I accept the fact that I must live forever to care for my […]


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